Resources For Patients

The Nationwide Children’s Center for Colorectal and Pelvic Reconstruction (CCPR) team is committed to helping your family understand your child’s colorectal condition as well as provide treatment and follow-up care. Please find a list of resources below that can help you and your family. Our team is also always happy to answer your questions or help you schedule an appointment. Please call (614) 722-4086 or email us at ccpr@nationwidechildrens.org.

Bowel Management Program

The Bowel Management Program is a week-long outpatient program for children dealing with the inability to control when stool needs to stay inside or leave the body. This custom set of treatments is designed to keep your child free from stool accidents, so that he or she may be able to wear normal underwear and participate in normal activities. For information on the Bowel Management Program Enema Program, click here. For information on the Bowel Management Program Medicine Program, click here. Bowel Management Program

Caring for Children Through All Stages of Life

Because of the complexity of many conditions related to the colon and rectum, some children require care throughout their life. This link outlines the lifetime milestones of care provided by the Nationwide Children’s Center for Colorectal and Pelvic Reconstruction. Caring for Children Through All Stages of Life

CCPR International Work

The Nationwide Children’s Center for Colorectal and Pelvic Reconstruction is devoted to caring for children around the world who have complex colorectal and pelvic abnormalities who otherwise have only limited access to surgical services. It is a fundamental principle of our work that children get the same standard of care around the world as they would if they were being cared for at Nationwide Children’s.

Colorectal Coloring Book

Download (PDF) this specially designed coloring book where the Rainbow Fish helps your child understand Bowel Management.

English Arabic Deutsch Español Hebrew Italiano

Colorectal Team

Meet the Nationwide Children’s Hospital CCPR Team. Meet Our Team

Connecting Families Mentor

Connecting Families provides an opportunity to receive support from another family which is matched together based on the child’s diagnosis. The mission is to help create family-to-family partnerships to promote healthy lifestyles and enhance the quality of life for the child and for their family. To request a mentor, please visit here. Connecting Families

Diet and Nutrition

Children with fecal incontinence often times benefit from diet modifications. Depending on the child, different diets and foods should either be added or avoided to help keep him or her clean and free from accidents. Consult your team for specific diet recommendations for your child.

Hospital Resources

Child Life Specialists

Family Resource Center

Sibling Clubhouse

Nationwide Children’s Health Library

Live Webinar Series

A live, educational webinar series for parents of children with colorectal conditions. Click here to download the brochure. Click Here to Register

Preparing for Surgery

These resources will help you and your family prepare for your surgery experience with us. Preparing for Surgery

Suggested Reading

Helping Hands: Helping Hand instructions are intended as a supplement to verbal instructions provided by the team at CCPR.

Anal Manometry

Appendiscotomy

Cecostomy Tube

Colonic Marker Study

Constipation: Infant

Constipation: Child Over One Year of Age

Constipation and Fecal Soiling

Contrast Enema

Diarrhea

Hirschsprung’s Disease

Inflammatory Bowel Disease

Neurogenic Bowel Regulation

Neurogenic Bowel: Bowel Training

Ostomy Care

Rectal Biopsy

Support Groups

Center for Colorectal and Pelvic Reconstruction Facebook Page

Hirschsprung’s and Motility Disorders Support Network (HMDSN)

Imperforate Anus USA Support Group Facebook Page

The Pull-Through Network

United Ostomy Association of America

The Top Questions to Ask of Any Bowel Management Program

To help our patient families make the most informed decision, we have compiled the top questions that we receive from families at the Center for Colorectal and Pelvic Reconstruction (CCPR), and to allow comparison of our Center to others across the country we have provided our answers to each question. Learn More

Youth Camps

Youth Rally Youth Rally helps teens who have a bowel or bladder dysfunction or ostomy prepare for independence and build a personal support network. Victory Junction Victory Junction enriches the lives of children with serious illnesses by providing life-changing camping experiences that are exciting, fun and empowering, at no cost to children or their families. The Center for Courageous Kids The mission of The Center for Courageous Kids is to uplift children who have life-threatening illnesses by creating experiences year-round that are memorable, exciting, fun, build self-esteem, are physically safe, and medically sound.

Global Patient Services

Global Patient Services supports the needs of patients and families arriving from out of town or out of the country. Global Patient Services Concierge Services include help with housing and travel arrangements, financial information and other support services. Global Patient Services

What to Expect at Your Visit

Specialists from many different disciplines will work together as a team to treat your child. Our CCPR staff and nurse navigators will assist you with your scheduling needs. What to Expect: CCPR

Our team is also always happy to answer your questions or help you schedule an appointment. Please call (614) 722-4086 or email us at ccpr@nationwidechildrens.org.