Jamie L Jackson

Contact Information

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

Psychiatry and Behavioral HealthPsychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Learn more about Jamie L. Jackson

Biography

Jamie Jackson, PhD, is a principal investigator in the Center for Biobehavioral Health in the Abigail Wexner Medical Research Institute at Nationwide Children’s Hospital, an assistant professor of Pediatrics and Psychology in the College of Medicine and Department of Psychology at The Ohio State University, and a licensed clinical health psychologist. Dr. Jackson attended graduate school in clinical health psychology at The Ohio State University and completed her clinical internship at Rush University Medical Center in Chicago. She completed a clinical fellowship in cardiac behavioral medicine at the Northwestern Medicine Bluhm Cardiovascular Institute at Northwestern Memorial Hospital in Chicago. Dr. Jackson then completed a two-year research fellowship as a T32 recipient (T32-HL-098039) in congenital heart disease through The Heart Center at Nationwide Children’s Hospital before joining the Nationwide Children’s Hospital research faculty. Dr. Jackson’s research focuses on disease self-management and health behavior engagement among cardiovascular at-risk adolescents and adults with an emphasis on individuals with congenital heart defects.

Patient Care

Locations

Main Campus of Nationwide Children’s Hospital

Academic and Clinical Areas

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Research

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Education

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Professional Experience

2013 - Present Center for Biobehavioral Health, The Research Institute at Nationwide Children’s Hospital, Principal Investigator2013 - Present The Ohio State University, Research Assistant Professor of Pediatrics

Contact Information

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Contact Information

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

Psychiatry and Behavioral HealthPsychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Learn more about Jamie L. Jackson

Biography

Patient Care

Locations

Main Campus of Nationwide Children’s Hospital

Academic and Clinical Areas

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Research

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Education

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Professional Experience

Contact Information

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Contact Information

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

Psychiatry and Behavioral HealthPsychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Learn more about Jamie L. Jackson

Contact Information

Call us at:
(614) 722-3182
Fax us at:
(614) 722-4718
Psychiatry and Behavioral HealthPsychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Learn more about Jamie L. Jackson

Biography

Dr. Jackson attended graduate school in clinical health psychology at The Ohio State University and completed her clinical internship at Rush University Medical Center in Chicago. She completed a clinical fellowship in cardiac behavioral medicine at the Northwestern Medicine Bluhm Cardiovascular Institute at Northwestern Memorial Hospital in Chicago. Dr. Jackson then completed a two-year research fellowship as a T32 recipient (T32-HL-098039) in congenital heart disease through The Heart Center at Nationwide Children’s Hospital before joining the Nationwide Children’s Hospital research faculty.

Dr. Jackson’s research focuses on disease self-management and health behavior engagement among cardiovascular at-risk adolescents and adults with an emphasis on individuals with congenital heart defects.

Patient Care

Locations

Main Campus of Nationwide Children’s Hospital

Patient Care

Locations

Main Campus of Nationwide Children’s Hospital

Patient Care

Locations

Main Campus of Nationwide Children’s Hospital

Locations

Main Campus of Nationwide Children’s Hospital

Locations

Main Campus of Nationwide Children’s Hospital

Locations

Main Campus of Nationwide Children’s Hospital

Main Campus of Nationwide Children’s Hospital

Academic and Clinical Areas

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Academic and Clinical Areas

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Academic and Clinical Areas

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Pediatric Psychology

Physician Team

Center for Biobehavioral Health

Principal Investigator

Jackson Lab

Principal Investigator

Primary Department

Psychiatry and Behavioral Health

Primary Section

Psychology

Pediatric Psychology
Physician Team
Center for Biobehavioral Health
Principal Investigator
Jackson Lab
Principal Investigator
Primary Department
Psychiatry and Behavioral Health
Primary Section
Psychology

Research

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Research

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Research

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Lab(s)

Center for Biobehavioral Health

Jackson Lab

Publications

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

View More Publications

Lab(s)

Center for Biobehavioral Health

Jackson Lab

                  Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;  

                


                  Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.

                


                  Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;  

                


                  Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.

                


                  Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;  

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;  

                


                  Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14;  101161HCQ0000000000000110.

                


                  Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26;  e024993.

                


                  Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21;  e025859.

                


                  John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17;  e025278.

                


                  Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10;  8903344221076529.

                


                  Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;  

                


                  Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.

                


                  Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;  

                


                  Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.

                


                  Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.

                


                  Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.

                


                  Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.

                


                  Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.

                


                  Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.

                


                  Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;  

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.

                


                  Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.

                


                  Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.

                


                  Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.

                


                  Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.

                


                  Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.

                


                  Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;  

                


                  Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.

                


                  Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;  

                


                  Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;  

                


                  Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;  

                


                  Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.

                


                  Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.

                


                  Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;  

                


                  Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

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Lab(s)

Center for Biobehavioral Health

Jackson Lab

Center for Biobehavioral Health
Jackson Lab
Jackson JL, Cheavens JS. Bridging Positive Psychology and Cardiovascular Health: A Call for Manuscripts. Eur J Cardiovasc Nurs. 2023 Jan 19;
Fox KR, Neville SP, Grant VR, Vannatta K, Jackson JL. Ambivalence is associated with decreased physical activity and cardiorespiratory fitness among adolescents with critical congenital heart disease. Heart Lung. 2022 Dec 30; 58: 198-203.
Jackson JL, Grant V, Barnett KS, Ball MK, Khalid O, Texter K, Laney B, Hoskinson KR. Structural Racism, Social Determinants of Health, and Provider Bias: Impact on Brain Development in Critical Congenital Heart Disease. Can J Cardiol. 2022 Nov 8;
Van Bulck L, Kovacs AH, Goossens E, Luyckx K, Zaidi A, Wang JK, Yadeta D, Windram J, Van De Bruaene A, Thomet C, Thambo JB, Taunton M, Sasikumar N, Sandberg C, Saidi A, Rutz T, Ortiz L, Mwita JC, Moon JR, Menahem S, Mattsson E, Mandalenakis Z, Mahadevan VS, Lykkeberg B, Leye M, Leong MC, Ladouceur M, Ladak LA, Kim Y, Khairy P, Kaneva A, Johansson B, Jackson JL, Giannakoulas G, Gabriel H, Fernandes SM, Enomoto J, Demir F, de Hosson M, Constantine A, Coats L, Christersson C, Cedars A, Caruana M, Callus E, Brainard S, Bouchardy J, Boer A, Baraona Reyes F, Areias ME, Araujo JJ, Andresen B, Amedro P, Ambassa JC, Amaral F, Alday L, Moons P, APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD).. Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease. Int J Cardiol. 2022 Sep 15; 363: 30-39.
Fox KR, Vannatta K, Jackson JL. Difficulties With Executive Function Are Associated With Risky Health Behaviors Among Young Adult Congenital Heart Defect Survivors. J Cardiovasc Nurs. 2022 Aug 29;
Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Kovacs AH, APPROACH-IS consortium.. Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. Eur J Cardiovasc Nurs. 2022 Jul 28;
Kovacs AH, Brouillette J, Ibeziako P, Jackson JL, Kasparian NA, Kim YY, Livecchi T, Sillman C, Kochilas LK, American Heart Association Council on Lifelong Congenital Heart Disease and Heart Health in the Young; and Stroke Council.. Psychological Outcomes and Interventions for Individuals With Congenital Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2022 Jul 14; 101161HCQ0000000000000110.
Lu CW, Wang JK, Yang HL, Kovacs AH, Luyckx K, Ruperti-Repilado FJ, Van De Bruaene A, Enomoto J, Sluman MA, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Moons P, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD) *.. Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries. J Am Heart Assoc. 2022 Apr 26; e024993.
Goldfarb MJ, Bechtel C, Capers Q 4th, de Velasco A, Dodson JA, Jackson JL, Kitko L, Piña IL, Rayner-Hartley E, Wenger NK, Gulati M, American Heart Association Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Lifelong Congenital Heart Disease and Heart Health in the Young; Council on Cardiovascular Radiology and Intervention; Council on Hypertension; Council on the Kidney in Cardiovascular Disease; and Council on Lifestyle and Cardiometabolic Health.. Engaging Families in Adult Cardiovascular Care: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Apr 21; e025859.
John AS, Jackson JL, Moons P, Uzark K, Mackie AS, Timmins S, Lopez KN, Kovacs AH, Gurvitz M, American Heart Association Adults With congenital Heart Disease Committee of the Council on Lifelong congenital Heart Disease and Heart Health in the Young and the Council on Clinical Cardiology; Council on Cardiovascular and Stroke Nursing; Council on Arteriosclerosis, Thrombosis and Vascular Biology; and Stroke Council.. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 Mar 17; e025278.
Kapa HM, Litteral JL, Keim SA, Jackson JL, Schofield KA, Crerand CE. Body Image Dissatisfaction, Breastfeeding Experiences, and Self-Efficacy in Postpartum Women with and Without Eating Disorder Symptoms. J Hum Lact. 2022 Feb 10; 8903344221076529.
Jackson JL, Fox KR, Rausch JR, Swenski TN, Neville SP, Marousis NC, Korth CX, Cua CL, Garg V, Vannatta K. A Randomized Clinical Trial Demonstrating Feasibility and Preliminary Efficacy of a Videoconference-Delivered Physical Activity Lifestyle Intervention Among Adolescents With a Congenital Heart Defect. Ann Behav Med. 2021 Dec 24;
Fox KR, Hardy RY, Moons P, Kovacs AH, Luyckx K, Apers S, Cook SC, Veldtman G, Fernandes SM, White K, Kutty S, Jackson JL, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness perceptions. J Behav Med. 2021 Dec; 44: 772-783.
Jackson JL, Fox KR, Swenski TN, Neville SP, Marousis NC, Korth CX, Rausch JR, Cua CL, Garg V, Vannatta K. Gender Differences in Physical Activity Engagement Among Adolescents With Congenital Heart Disease. J Pediatr Psychol. 2021 Nov 2;
Casteigt B, Samuel M, Laplante L, Shohoudi A, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Brouillette J, Moons P, Khairy P, of the APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Atrial arrhythmias and patient-reported outcomes in adults with congenital heart disease: An international study. Heart Rhythm. 2021 May; 18: 793-800.
Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, Kovacs AH, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (from APPROACH-IS). Am J Cardiol. 2021 Apr 15; 145: 135-142.
Jackson JL, DeSalvo J, Leslie CE, Rausch JR. Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors. J Cardiovasc Nurs. 2021 Mar-Apr 01; 36: 165-171.
Jackson JL, Korth CX, Leslie CE, Cotto J, Mah ML, Hor K, Cripe L, Al-Zaidy S, Camino EM, Church K, Lehman KJ, Shay V, Mendell JR. Health-Related Quality of Life and Emotional Distress Among Mothers of Sons With Muscular Dystrophy as Compared to Sex- and Age Group-Matched Controls. J Child Neurol. 2021 Mar; 36: 177-185.
Callus E, Pagliuca S, Boveri S, Ambrogi F, Luyckx K, Kovacs AH, Apers S, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Kutty S, Moons P, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD) .. Phenotypes of adults with congenital heart disease around the globe: a cluster analysis. Health Qual Life Outcomes. 2021 Feb 10; 19: 53.
Moons P, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Lu CW, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Ombelet F, Apers S, Kovacs AH, APPROACH-IS Consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15 Countries. Can J Cardiol. 2021 Feb; 37: 215-223.
Moons P, Apers S, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Oechslin E, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Luyckx K, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of life. Eur J Cardiovasc Nurs. 2021 Feb 11; 20: 48-55.
Apkon S, Kinnett K, Cripe L, Duan D, Jackson JL, Kornegay JN, Mah ML, Nelson SF, Rao V, Scavina M, Wong BL, Flanigan KM. Parent Project Muscular Dystrophy Females with Dystrophinopathy Conference, Orlando, Florida June 26 - June 27, 2019. J Neuromuscul Dis. 2020 Dec 22;
Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international study. J Psychosom Res. 2019 Sep; 124: 109762.
Holbein CE, Veldtman GR, Moons P, Kovacs AH, Luyckx K, Apers S, Chidambarathanu S, Soufi A, Eriksen K, Jackson JL, Enomoto J, Fernandes SM, Johansson B, Alday L, Dellborg M, Berghammer M, Menahem S, Caruana M, Kutty S, Mackie AS, Thomet C, Budts W, White K, Sluman MA, Callus E, Cook SC, Khairy P, Cedars A, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan Circulation. Am J Cardiol. 2019 Jul 1; 124: 144-150.
Sluman MA, Apers S, Sluiter JK, Nieuwenhuijsen K, Moons P, Luyckx K, Kovacs AH, Thomet C, Budts W, Enomoto J, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Gosney K, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Bouma BJ, Mulder BJM, APPROACH-IS consortium, the International Society for Adult Congenital Heart Disease (ISACHD).. Education as important predictor for successful employment in adults with congenital heart disease worldwide. Congenit Heart Dis. 2019 May; 14: 362-371.
Larsson L, Johansson B, Sandberg C, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Alday L, Eriksen K, Dellborg M, Berghammer M, Rempel G, Menahem S, Caruana M, Tomlin M, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Moons P, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Geographical variation and predictors of physical activity level in adults with congenital heart disease. Int J Cardiol Heart Vasc. 2019 Mar; 22: 20-25.
Jackson JL, Morack J, Harris M, DeSalvo J, Daniels CJ, Chisolm DJ. Racial disparities in clinic follow-up early in life among survivors of congenital heart disease. Congenit Heart Dis. 2019 Mar; 14: 305-310.
Jackson JL, Harrison T, Keim SA. Differences in Obesity Among Black and White Children, Adolescents, and Adults With Congenital Heart Disease. J Cardiovasc Nurs. 2019 Jan/Feb; 34: 71-75.
Schiele SE, Emery CF, Jackson JL. The role of illness uncertainty in the relationship between disease knowledge and patient-reported outcomes among adolescents and adults with congenital heart disease. Heart Lung. 2018 Nov 21;
Jackson JL, Gerardo GM, Monti JD, Schofield KA, Vannatta K. Executive Function and Internalizing Symptoms in Adolescents and Young Adults With Congenital Heart Disease: The Role of Coping. J Pediatr Psychol. 2018 Sep 1; 43: 906-915.
Ko JM, White KS, Kovacs AH, Tecson KM, Apers S, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, Callus E, Kutty S, Gandhi A, Moons P, Cedars AM, APPROACH-IS consortium and International Society for Adult Congenital Heart Disease (ISACHD).. Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart Disease. Am J Cardiol. 2018 Jul 17;
Jackson JL, Leslie CE, Hondorp SN. Depressive and Anxiety Symptoms in Adult Congenital Heart Disease: Prevalence, Health Impact and Treatment. Prog Cardiovasc Dis. 2018 Jul 20;
Moons P, Luyckx K, Dezutter J, Kovacs AH, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Apers S, APPROACH-IS Consortium., International Society for Adult Congenital Heart Disease (ISACHD).. Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the globe. Int J Cardiol. 2018 Jul 23;
Hardy RY, Gurvitz M, Jackson JL, May S, Miller P, Daskalov R, Foster E. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66: 324-328.
Holbein CE, Fogleman ND, Hommel K, Apers S, Rassart J, Moons P, Luyckx K, Sluman MA, Enomoto J, Johansson B, Yang HL, Dellborg M, Subramanyan R, Jackson JL, Budts W, Kovacs AH, Morrison S, Tomlin M, Gosney K, Soufi A, Eriksen K, Thomet C, Berghammer M, Alday L, Callus E, Fernandes SM, Caruana M, Menahem S, Cook SC, Rempel GR, White K, Khairy P, Kutty S, Veldtman G, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation. Congenit Heart Dis. 2018 May; 13: 392-400.
Monti JD, Jackson JL, Vannatta K. Adolescents and Young Adults Living with Congenital Heart Disease: Coping, Stress Reactivity, and Emotional Functioning. J Clin Psychol Med Settings. 2018 Feb 17;
Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S, APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).. Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors. Int J Cardiol. 2018 Jan 15; 251: 34-41.

Education

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Education

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Education

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Date of Appointment at Nationwide Children’s Hospital: 02/28/2014

Fellowship

Nationwide Children’s Hospital

Date Completed: 09/30/2013

Fellowship

Northwestern Memorial Hospital

Date Completed: 07/31/2011

Internship

Rush University Medical Center

Date Completed: 07/31/2010

Professional Experience

2013 - Present Center for Biobehavioral Health, The Research Institute at Nationwide Children’s Hospital, Principal Investigator

Contact Information

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Contact Information

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Contact Information

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Psychiatry and Behavioral Health

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Call us at: (614) 722-3182

Fax us at: (614) 722-4718

                    Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Call us at:
(614) 722-3182
Fax us at:
(614) 722-4718
Psychology/Neuropsychology700 Childrens DrColumbus, OH 432052664 (map)

Contact Information#

Contact Information